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Lifestyle & Trends - Community
Rare diseases: Increasing awareness for better patient outcomes
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Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely difficult for these patients to find accurate information on their disease. One of the first things patients do is research everything they can about their illness, including connecting with someone who is also living with the disease, and learning their options for disease management and treatment.
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Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma
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In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is important to drive awareness about some rare cancers that are many times undiagnosed until the cancer has already spread. One particular cancer, multiple myeloma, often goes undiagnosed until the disease has spread to the bone.
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Easy ways to make a difference this summer
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Summer provides a much needed break for families and a perfect opportunity to make a difference in the community. Depending on interest and time, there are many different ways to get involved or make a charitable contribution.
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Giving back to family caregivers: Tips to help those who sacrifice for others
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No one knows exactly what life will bring, but we all know that there will be joys and there will be challenges. Sometimes, life gives you a combination - as millions of average Americans who are family caregivers can attest. Providing dedicated care to a loved one is a generous way to live one's life, but it can also brings difficulties, stress and isolation. That's why giving back to those unsung heroes - caregivers - who give so much can make a world of difference to them, and the people they help.
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Nearly 1 in 10 Americans lives with a rare disease
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Did you know that the same number of people die each year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And yet IPF, a rare and debilitating disease that causes permanent scarring of the lungs, is still relatively unknown.
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